Don't be alarmed... this is not urine... just a picture I took of a regular, run of the mill rain puddle! |
Sitting, standing. Inside, outside. Laughing, silent. At
home, in public. Washing dishes, giving Titus a bath, riding in the car… my
bladder isn’t too picky. I lose control of my bladder and empty it then and
there under any circumstance.
To make matters worse, the high pressured stream of urine
that escapes from my bladders inadequate security system burns the whole way
down.
I have two options. Try to tense my feeble muscles to stop
the flow… which then causes so much pain from the quivering weak muscles
holding back the flood and the fact that I still need to release the urine. Or
just try to relax and breathe while the puddle of pee gets deeper by the
second.
Depending on the situation I prefer to choose option 2…
although it makes a huge nasty mess and is really embarrassing, the pain is
less blinding. No matter which method I choose it is so frustrating.
Whatever I’m up to when suddenly the flood gates open I have
to stop immediately. Depending on who’s around I some times strip right there and
leave the mess for some one to clean up. Other times I waddle up the stairs in
my drenched clothes where I strip and leave my pee soaked pants in the sink.
The worst times have been in the car… I never go to the
bathroom away from the house unless it’s absolutely necessary (read my public
restroom blog to find out more). Often times I wait too long and I find myself
in a splashing pond spilling over the leather seat. (Oh great… I’m never going
to get a ride any where, ever again!) In this case I do my best to stop the pee
but I usually continue going tiny bits the whole way home. I have started
keeping an extra pair of pants in my car for any public accidents but that
doesn’t help the pain issue.
As soon as I can I get in the shower to rinse the poisonous
urine off of me and to try to ease the pain. Most post-incontinence episodes
include hours in the shower and usually my succumbing to taking pain medicine.
My incontinence has gotten so out of control that I have
been having major accidents like 3-5 times a week. I have been strategically
leaving the house after my bladder is as empty as can be and then trying to get
home before I need to empty it again.
While at my urologist I mentioned this new amplified version
of my usual symptom and she agreed that was not a way to live.
So tomorrow I am going to the hospital, being put under
general anesthesia, having a scope voyage up my urethra, and then having my
bladder injected 20- 30 times with Botox.If I understand it correctly… it is suppose to relax the
muscles to stop the spasms and general disobedience. The only concern is that
it may cause more retention which would force me to self cath (yes that means
what you think it does… put a catheter in by myself every time I have to go to
the bathroom to drain my bladder).
It would be so grand if this helped! I’m told it can be
effective any where from 6 to 20 months. Also, it can be repeated as frequently
as every 6 months.... if it helps!
So, I am praying my guts out that it will control my bladder
muscles enough to hold the urine in BUT be able to relax enough to release the
urine at the appropriate times, specifically when I tell it to.
I have heard it takes about a week to notice any difference
so be expecting a follow up Botox blog! Thanks for reading and all of your
continued prayers.
Praying for you my most amazing & courageous friend!!!
ReplyDeleteLove Holls
God hear our prayers, as we scream them from the top of our lungs. This beautiful sweet God Loving young lady has suffered enough. Please heal her now, please, please. Give the Dr. an extra measure of knowledge and skill as they do this procedure, make it do the job while we are waithing for the miracle that only you can give to heal here once and for all. Thank you God for making yourself available to us, to talk to you direct and know that you are listening. Help us to understand why whe has to suffer. Thank you for making her the special lady she is! amen
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