I am just a victim of the disease, I am not a medical genius
nor do I have millions I can donate to help spread awareness and continue
research. All I have is my words that I use to write this blog. I have reached
people who have never heard of IC and many who suffer alone with IC every
single day. I want this to reach even more people from all over the world! IC
isn’t prejudice and people all over suffer with this debilitating disease.
Just recently I got an email from some one in Australia who
was desperately seeking support from others in her neck of the woods. If a patient can’t even find one person who
also has IC, how can she find treatments and a doctor who will care for her?
I want IC to be known and dreaded. I want people to know
exactly what we suffer with when we tell them we have IC. I don’t want to us to
explain it. I want to hear about IC Walks all over the country and see that beautiful teal IC
support gear in stores.
The pain from IC is compared to the pain from cancer
frequently. Obviously we don’t have a death sentence but we do have a life
sentence. If nothing changes in the research and treatment world we will suffer
with this for the rest of our lives. We live in pain instead of die in pain. We
need just as much awareness and support as cancer!
Please share my blog so that people completely unaware of IC
can be informed. If this is the first you have ever read of IC, take a minute
and read into it. My first couple blog entries really detail what IC is and how
we all suffer differently. Then share it! Each person that hears about IC is
another score against our enemy.
Thank you for helping me spread IC awareness. This is
personal. This is my life. This means the world to me.
Find out more at www.icawareness.org
Thanks for posting a link to the site. Didn't know IC was all official with a color and flower. :)You inspired me to start my own blog about my struggles with IC. Feel free to check it out and let me know what you think.
ReplyDeletehttp://ic-you.blogspot.com/
It's been amazing that I've been able to encourage so many people, even ones that don't have IC.
Two things: one - Thank goodness there isn't pain in heaven. Two- so happy I found your blog and you are generous enough to share your experiences with strangers. It is breathing life into me. Thank you.
ReplyDeleteI wanted to thank you for posting this, as well as doing a blog about I.C., I wish more people became aware of it, and I have begun blogging as well about it to try and educate people. Thank you for writing your blog! It has helped me.
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